Ethical, Legal, and Social Implications of CF Screening
{"Image DocumentName": "Ethical, Legal, and Social Implications of CF Screening", "Image ImageDescription": "Unnecessary anxiety created. Inadequate pretest information. Legal. Informed Consent. Insurance discrimination. Social. Expense swell health costs. Societal pressure not to bear affected offspring. NIH conducted pilot studies before issuing consensus statement. Ethical, legal and social issues were looked at in deciding whether CF screening should be implemented. Ethical: Anxiety levels: no increase in anxiety levels by CF education or DNA testing. Less than half (44%) whose result was negative understood that they could still have a child with CF, providers in that study spent little time explaining CF carrier screening and generally relied in patient comprehending written material (article) Legal: Without proper education, can\u2019t really be considered an informed consent to testing, suggestions have been made to use quizzes that would test patient understanding, provider cannot be held liable for couples that have children with CF. 1/3 of those express concern about insurance discrimination, laws in place that prevent discrimination, most of the concern with insurance discrimination is with predictive gene tests and insurance companies reducing benefits on the basis of predictive gene test. Social: 57% offered screening accepted, factors against religious beliefs, 1/3 insurance fears. Most decided on their own rather than on the basis of physician, reasons were logical, most women who would not terminate a pregnancy for CF chose not to be tested. Overall, NIH pilot studies have not shown results that substantiate concern over any of these implications, except for adequate pretest education. Several studies have been done since then and these same issue has arisen, that providers aren\u2019t familiar with the information about CF and in turn do not pass along to their patients.", "Image XResolution": "37", "Image YResolution": "37", "Image ResolutionUnit": "Pixels/Centimeter", "Image Software": "SlidePlayer", "Image YCbCrPositioning": "Centered"}